Author: Henry Feeser (Page 6 of 65)

84 yr old retired military on dialysis. Currently living in the Granbury, TX area.
See www.feeser.net for more info

Second Caretaker Bucket – Cardio

This is the second blog in our effort to prepare for whatever the VA may ask and/or require to support our application for Caretaker Support. In yesterday’s blog, I laid out our case for the Dialysis Bucket. Today, we will address the Heart/Cardio Bucket. But first, some news:

I ascertained yesterday that while we were notified of an appointment this coming Friday, we were not informed of the location. I called the Caretaker national support line and was told they would check in with the support responsible for the area in which we live. When I didn’t hear anything in a reasonable amount of time, I did a Google and called the Texas support line and was informed the text was for an audiology appointment, which has since been rescheduled by the provider, and no appointment had yet been made regarding our caretaker request. So we are ahead of the game at this point. In this regard, I have also started a daily log of all the activities my wife engages in to provide me direct caretage support.

Regarding my heart. I am currently receiving 60% VA disability as a result of a triple bypass in 2015, the need for which is directly tied to being a diabetic, which in turn is directly related to exposure to Agent Orange in Vietnam. The current status of my heart, which was ascertained in February 2025, is that all is not as it should be on the backside, but due to my age and condition, nothing will be done about it. This condition manifests itself in several ways. I can not walk for any distance without becoming short of breath. My blood pressure is whacked; at times, it runs in the 150/80 range, low in the 100/55 range. Same with my pulse. At times, it is in the 80s, while at others in the 40s and 50s. Quite often, as a result, I just feel like crap.

What does my caregiver have to do with this? On numerous occasions, I have fainted just out of the blue. I can feel it coming on and do my best to gracefully go down if I’m outside, as I have been on at least three occasions or head for a couch or chair if inside. The EMTs have been called as a result of such behavior. My wife, as a caregiver, is sensitive to signals that I may be having an episode and ensures that I am cared for. In addition, she has assumed many of the household chores I normally took care of, such as taking out the weekly trash, working in the yard, many functions having to do with care and maintance of my dialysis equipment, sheduling support workers for home repairs, and other tasks involved in running a household.

Her caregiver support is essential and central to my continued living at home, also due to my compromised conditions, including my cardio deterioration

Caregiver Support and Dialysis

Yesterday’s blog outlined the three major areas my wife, as a caregiver, supports my health and well-being. In this blog, I will expand on the first major area, dialysis. Recall, this is preparation for whatever the VA asks of us in support of our application for the Caregiver Program.

Here is a comprehensive listing of the ways my spouse assists me with my peritoneal dialysis routine at home:

Assistance with Treatment Tasks

  • Setting up the Dialysis Machine: Connecting solution bags, setting machine parameters, ensuring proper operation, and troubleshooting minor issues. This is especially critical during illness on my part when I cannot operate the Cycler. (See pic 1 below)
  • Preparing the Treatment Space: Clearing and organizing a clean, pet-free area, arranging furniture for comfort and accessibility, and ensuring adequate lighting
  • Organizing Supplies: Ordering, receiving, unpacking (without breaking sterile seals), and storing dialysis supplies in an organized, accessible manner (See pic 2 below)
  • Maintaining Cleanliness: Cleaning the treatment area, ensuring all surfaces and hands are disinfected, and helping with sterile techniques to minimize infection risk (See pic 3 below)

During Dialysis Sessions

  • Assisting with Exchanges: Helping connect and disconnect tubing, monitoring for leaks, and ensuring all steps are performed in the correct order
  • Monitoring for Complications: Watching for signs of infection (redness, swelling, fever), leaks, or equipment malfunction, and knowing when to seek medical help. Provide catheter area oversight and care.
  • Timekeeping: Keeping track of treatment schedules, ensuring exchanges happen on time, and making sure no treatments are missed

Health and Lifestyle Support

  • Fluid Balance Monitoring: Measuring and recording input and output, tracking weight, and helping adjust fluid intake as directed by our care team.
  • Meal Preparation: Shopping for groceries, preparing kidney-friendly meals, and encouraging adherence to dietary guidelines. Liaise with the team dietitian.
  • Medication Management: Assist in prescriptions, organizing medications, and reminding me to take them as prescribed.
  • Exercise and Activity: Encouraging and assisting with appropriate physical activity as recommended by my dialysis and healthcare team

Logistics and Transportation

  • Errands and Appointments: Driving me to in-center checkups, lab visits, or other medical appointments, and running errands as needed. See “legs” blog Thursday for the need for this.

Emotional and Social Support

  • Providing Encouragement: Offering emotional support, helping me cope with the challenges of dialysis, and maintaining open communication. 48% overall of dialysis patients are depressive. 98.5% of PD patients display depressive symptoms.
  • Part of this support is the care and feeding of our Golden Retriever, who acts as an emotional support dog for me in all regards, not just dialysis. Without the support of my spouse, I could not keep and maintain my support golden.
  • Advocacy: Communicating with our healthcare team, asking questions, and advocating for our needs or preferences.

Emergency Preparedness

  • Recognizing Emergencies: Knowing when to call for medical help (e.g., signs of peritonitis, severe pain, or equipment failure)
  • Backup Planning: Being prepared for power outages or supply shortages, and knowing how to handle unexpected situations. This is especially critical in North Texas due to tornado activity being common.

Summary:
My spouse’s role as my caregiver in peritoneal dialysis is multifaceted, involving hands-on treatment tasks, infection prevention, scheduling, health management, logistical support, and emotional care. Her involvement is crucial not only for the technical aspects of my dialysis but also for maintaining my overall well-being and quality of life. Without her, I could not and would not be able to soldier on.

Building A Strategy For Our Application For Comprehensive Assistance for Family Caregivers

Last week, I posted on this blog that we (my wife and I) were applying for the VA assistance program cited in the title. Already, we have been scheduled for our first meeting with local authorities as the first step in their process. The meeting is this Friday, June 6th. Some things do move quickly.

Remember that this program is about the caregiver and was put in place to support caregivers so that they can and will continue to provide care and attendance to disabled vets. It is intended to support them in their effort to provide care and comfort to the vet, in this case, me.

We are currently developing a strategy to present our situation in a favorable light to the boards we will encounter. In blogs, for the remainder of the week, I intend to share our process. Starting with today, I will outline what we have defined as a starting point, that of the specifics of my VA disability ratings.

A firm requirement of the caregiver program is that the vet be rated at 70% disability or greater, have served on active duty for at least two years, and their disability be related to their active duty. I qualify on all of these counts as I am currently rated at 100% disability, served 25 years active duty, and all my VA ratings are tied back to Agent Orange exposure while in Combat Zones in Vietnam.

We have sorted my ratings into four baskets: 1 100% rating for nephropathy with hypertension resulting in seven days a week peritoneal dialysis, 2 60% rating for coronary artery disease resulting in shortness of breath given any exertion, and 3 60$ % rating for right leg diabetic neuropathy and 50% in left leg. Everything else is in basket 4.

Over the next three blogs, I will expand on the conditions cited in the previous paragraph and how my spouse, acting as a caregiver, is central to my being able to soldier on.

Looking Ahead

It’s a fantastic Friday for those who work forty hours a week. For those of us on dialysis, it’s just another day. It’s been this way for a couple of weeks for me. Quite uncommon. Next week, the schedule picks up again. I start my quarterly Adequacy Text on Tuesday. On Wednesday, we have Supply Delivery plus at 1000 dialysis labs. On Thursday, it is my privilege to visit our dermatologist for more skin cancer removal. Then we’re back to another fantastic Friday.

With the frequent rains recently in North Texas, weeds are growing profusely. We’re going to have to get out there on hands and knees pretty soon, or things will get out of hand. Luckily, the landscape crew found a window on Wednesday and got the grass mowed. It’s now up to my wife and me to get the rest up to snuff—a never-ending task.

Dialysis continues to roll along without any surprises, pretty much on schedule. My wife continues to provide invaluable emotional and physical support in keeping all the moving parts to my dialysis all going in the right direction. Speaking of my wife, today I filed the VA Form to start the ball rolling to get her properly compensated for her effort (VA 10- 10sc) online. Wish us luck!

A Side Note

Life is serious enough without concentrating on and/or ignoring other aspects of life. I like music, especially blues and, by extension, boogie woogie. It reminds me of my younger days, before dialysis, when I could and did “go all night.”

There was a dude in the Boston area named Preacher Jack. It was a character, but a talented musician. Enjoy one of his renditions below:

On Being Prepared

I don’t recall much being said during my PD training several years ago about handling “emergencies.” I’m referring to power outages and/or the need to disconnect from the cycler quickly in case of a tornado or other such threat.

Sunday night, right on cue, we were awakened to a message on my wife’s phone that a thunderstorm warning had been issued. As per usual, she was concerned and turned our household into one of turmoil, which lasted until well after 5 AM. Along the way, we dropped power, my cycler automatically switched over to its UPS, and our bedroom TV continued to work because of the UPS on it and our T-Mobile internet connection.

Since tornado threats were also involved, my wife placed a set ot clothes and shoes in our pantry off the kitchen, which is enclosed entirely by interior walls and is large enough for the two of us and our Golden, Dickens, to take cover in.

The power came back on after about 45 minutes of being down, and in the interim, I instructed my wife on how to use her phone to obtain real-time weather radar info, and how to obtain local tv news stations on the bedroom TV. So all-in-all it was a good drill in emergency preparedness.

BTW, regarding the Cycler: My plan is to just turn it off if it hasn’t already been shut down due to lack of power, unhook, and worry about draining any remaining fluid out when the dust settles. This could be into a sink, on the ground, into provided drain bags, etc. Worry about this later if the brown stuff hits the fan.

We Remember

While on active duty in the US Navy, I was privileged to be the Officer-In-Charge of a first-of-its-kind land-based test site in Ronkonkomo, NY, out on Long Island. One of my crew at that time was a First Class Petty Officer named Robert Shippe. He went on to accomplish great things in the Navy, the last of which was to give his all. Read on below. Today I remember Shippie and all the Shippies who gave their all.

Senior Chief Petty Officer Robert Lawrence Shippee was a highly regarded member of the United States Navy, serving as a Fire Control Senior Chief aboard the USS Stark (FFG-31). He was born on June 10, 1951, and hailed from Adams Center, New York. Shippee was killed in action on May 17, 1987, when the USS Stark was struck by two Iraqi Exocet missiles in the Persian Gulf during the Iran-Iraq War

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At the time of the attack, Shippee was 35 years old and had served nearly 18 years in the Navy. He was the senior chief of fire control, responsible for overseeing the ship’s computer tracking systems for missiles. Shippee had recently lived in Ponte Vedra, Florida, near his home port of Mayport. He left behind his wife, Carol, and three children: Patricia (12), Timothy (10), and Brian (8)

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Shippee was remembered as a dedicated professional and a devoted family man. His funeral was held at the Seventh Day Baptist Church in Adams Center, with a large community turnout and full military honors, including a 21-gun salute and the presentation of the American flag and Purple Heart to his widow

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His legacy is honored in military tributes and memorials, recognizing his sacrifice and service in the line of duty.

We remember.

Monday was the day

Every Gardner, regardless, relishes their first ripe tomatoes of the season. In this regard, put me at the head of this class. Monday afternoon, at my pleasure, my wife picked our first two ripe tomatoes, which she then incorporated into lunch BLTs. Heaven baby. See pic below. Plants in ground last of Feb 2025, first ripe tomatoes 5/19/25:

Back in Battery

Got over the blahs I had Saturday although my BP is still on the low in with a diastolic in the low 60s.

Friday I made a trip up to our son’s place in the Palo Pinto area and took him out for lunch in Mineral Wells. Over lunch, I learned that Sidney, our GD, is caught up in the recent cutbacks in government funding of research at universities. She is seeking research into her area of interest, the effects of global warming on aspects of sea life. She’s caught between the devil and deep blue sea, so to speak.

Our son continues to work when he has time on their greenhouse. See pic below.

Hot Weather and Blahs Here

It is predicted to be 102°F here in Pecan Plantation today. Our yard person, Sonja, arrived at 0800 to get five hours in. Of course, I was still hooked up to the dialysis cycler, and my wife took care of business.

Speaking of business, we have been looking at potential real estate moves for the last couple of days. Nothing has floated out collective boats. I proposed a triate decision model to my wife at breakfast: 1. Do nothing and stay with what we have, 2. Downsize, which is what we originally were considering and is the most common move, or 3. Move way up the scale as an investment. This alternative we had not discussed or considered before. There is an ultra nice place for sale the next block over, that is a two-story, 4000 sq ft for $800K, and river-front 3000 sq ft for $495k.

To help alleviate the Blahs, here’s a little ditty named “It’s All About That Base.” Enjoy!

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